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Beginning in 2019, a group of thought leaders within the peripheral nerve field began to discuss the possibility of forming a non-profit organization that would focus on improving the awareness and care of patients with peripheral nerve injuries. This future organization would include all perspectives ranging from the public to patients to health care providers.
Over the next three years, these thought leaders, with the support of Axogen Inc., held multiple planning meetings using many post-it note pads (see picture right) to define the foundation and its focus.
Early GNF planning meeting in 2019
From left to right: Dr. John Zuniga, Isabelle Billet, Wyndell Merritt, Dr. Dominic Power, Karen Zaderej, Dr. Jeffrey Greenberg, Xeve Silver, Dr. Harry Hoyen, Dr. Jayme Bertelli
GNF planning meeting in April, 2019
From left to right: Xeve Silver, Dr. Ivica Ducic, Dr. Harry Hoyen, Isabelle Billet, Orlando Merced-O’Neill, Dr. Dominic Power, Erick DeVinney
The Foundation was structured into four strategic pillars of Awareness, Education, Research, and Advocacy. Goals and objectives were developed for each of them, in order to bring to life the mission and vision of the Global Nerve Foundation.
After forming its board and incorporating in 2021, the Foundation hired its first Executive Director, Stephen McConoughey. As the infrastructure for the foundation was established, committees aligned with strategic pillars were formed to focus on key execution initiatives. Each committee is developing the programming for a particular pillar that will be available to the members of the foundation.
Millions of people worldwide live with peripheral nerve injuries that could be treated to improve their quality of life or regain function of an extremity. The Global Nerve Foundation finds this unacceptable and is working with doctors, researchers, and patient advocacy groups across the world to raise awareness of this issue potential treatments, and improve clinical care.
Our mission is to improve the lives of people with nerve problems
Our vision is advancing and promoting excellence in nerve care.
Board of Directors
Staff
Stephen McConoughey, PhD, MPA
Dr. McConoughey completed his undergraduate degree at The Ohio State University before obtaining his PhD in neuroscience at Cornell Medical College. He has over 10 years of experience in the non-profit sector serving in multiple roles including Project Manager, Director of Operations, and Executive Director.
In 2020, he completed his Master of Public Administration from the University of North Carolina.
Selena Ruffin
Selena Ruffin is the Global Nerve Foundation’s current Grant Writing Intern. She graduated from Northwestern University with a writing-intensive double major in English Literature and Social Policy. Her non-profit grant writing career began while at Northwestern, so she has over four years experience in the field, with over 8 years experience in the non-profit sector more generally. This past non-profit experience includes Susan G. Komen‘s Memorial Affiliate, the Hazelden Betty Ford Foundation, and the Global Give Back Circle. She also currently works as an ESL writing coach, as a continuation of her work at Northwestern’s Writing Place.
Kirstianna Lombardi
Kirstianna is a Clinical Research Coordinator in the Division of Peripheral Nerve and Pain Surgery at the University of Utah, where she oversees studies focused on improving care for patients with chronic and debilitating pain conditions. With over five years of experience as a CRC and a master’s degree in psychology, she brings both technical expertise and deep compassion to her work. Her background in psychological science informs a patient-centered approach to neurosurgical research. Kirstianna is proud to support the Global Nerve Foundation’s mission as a part-time Member and Research Coordinator.
Carson Ordoyne - Carson Social
Carson Ordoyne is our marketing partner and owner of Carson Social.
Carson Social is a social media marketing and freelancing business out of South Alabama.
Carson has experience working with many different niches such as marketing agencies, small business owners, and nonprofits.
Dr. Madi El-Haj discusses the complexity of diagnosing nTOS
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